The International Rett Syndrome Foundation is relentlessly pursuing a cure for Rett syndrome in the future while also providing unwavering support for families fighting Rett right now.
IRSF Has Been Changing the Game
IRSF Has Been Changing the Game
In our 38-year history, we have invested $58 million in Rett syndrome research.
Through the support of our donors, IRSF has been investing in projects that profoundly impact foundational Rett syndrome research, resulting in discoveries and partnerships critical to our mission of finding a cure. IRSF is advancing drugs and genetic approaches.
To find a cure for Rett syndrome, we have to give it everything we’ve got — for families, for children and for a future without Rett.
We’re ALL IN. No matter what it takes.
So we’ve set a bold goal: raise $29 million by 2024 to advance treatments and a cure for those with Rett syndrome.
We know this goal is possible, but not without your help.
Solutions for ALL
Rett is a complex disorder, and it shows up in many different ways. A one-size-fits-all approach to a cure would leave families around the world without hope. Your support empowers IRSF to continue our strategic pursuit of every promising lead to provide solutions for all.
Our three-pillar strategy:
Funding Critical Research
We carefully identify and fund game-changing, foundational Rett research, including the discovery of which gene causes Rett.
Creating a Robust Pipeline
We advance promising ideas from research to the therapeutic pipeline, accelerating solutions for every family battling Rett.
Ensure Clinical Trial Success
We collaborate with families, pharmaceutical companies, physicians and the FDA to eliminate obstacles to successful clinical trials.
Through our Center of Excellence Network, we’re ensuring care and therapies reach everyone living with Rett.
Go ALL IN With Us
Get Involved
Advocacy and raising awareness are crucial to supporting families, raising funds and finding a cure for Rett. See how you can help.
Donate
Help fund critical research that will provide hope and ultimately, a cure, for all individuals with Rett by donating today.
Join Us
Keep up with exciting updates on advances toward a cute and how you support is helping children with Rett thrive.
Mallory & Nathan Stump, parents to Maylee
Mallory & Nathan Stump, parents to Maylee
“The outpouring of love we received from IRSF helped us to pick ourselves up and to help carry Maylee through this journey.”
“The outpouring of love we received from IRSF helped us to pick ourselves up and to help carry Maylee through this journey.”
ACADIA Pharmaceuticals
Thank you to the International Rett Syndrome Foundation (IRSF) and the entire Rett community who help make this research possible. We appreciate your continued partnership on this journey to find a treatment to address the core symptoms of Rett syndrome.
Julie Nguyen, mom to Sonia
Thank God for IRSF, because if I didn’t have IRSF, I would feel so alone and isolated.
In It Together
Together, we can raise $29 million by 2024 for advance treatments and a cure for those with Rett syndrome.
Together, we can raise $29 million by 2024 for advance
treatments and a cure for those with Rett syndrome.
treatments and a cure for those with Rett syndrome.
IRSF Receives the
Highest Ratings
IRSF Receives the Highest Ratings
